CONCERNED NEBRASKANS FOR CYSTIC FIBROSIS
(CNCF)
Cystic Fibrosis (CF) is a fatal genetic disorder and is not contagious. A child must inherit two mutated genes, one from each parent. Symptoms include chronic infections, persistent coughs, digestive problems, breathing difficulties and poor growth. So far, there is no cure.
Concerned Nebraskans for Cystic Fibrosis (CNCF) is a non-profit support group in Lincoln organized over 20 years ago and is comprised of family and friends of CF patients. Because there is no paid staff, all proceeds raised by CNCF go directly to CF research or programs and activities for CF patients and their families.
CNCF funds Camp Jenney, the only summer camp for CF children in the state, and one of the few in the country. Every year in August, children with CF from all over Nebraska come to the site of Camp Kataki for a week of fun and sun. CNCF teams up with the American Lung Association of Nebraska for this event. With doctors and other staff from the University of Nebraska Medical Center CF Research Center in Omaha on hand, these children are provided a rare opportunity to act like kids. CNCF is proud to offer this to young CF patients every year at no cost.
CNCF also provides scholarships to CF patients for post secondary education and job training programs and grants for other types of expenses that CF patients must incur. With the huge expenses for prescriptions, treatments, doctors, and hospital bills, CNCF hopes to continue its support for higher education opportunities for CF patients.